tag:blogger.com,1999:blog-2144432922282567277.post3553464477152472851..comments2023-10-31T09:42:19.283-04:00Comments on Eve vs. Wilms: The Constituents of Wilmsville.Christy Griffithhttp://www.blogger.com/profile/12475545289065722666noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-2144432922282567277.post-60479403737637730822011-06-04T12:04:31.422-04:002011-06-04T12:04:31.422-04:00I was forwarded the link for your blog by my new f...I was forwarded the link for your blog by my new found friend Candy Morton. We met at Duke. My daughter Piper was diagnosed on her 1st birthday (3.2.11) with bilateral wilms tumor. It wasn't a complete shock to us because she was also born with aniridia. However, it's never easy to hear... I have enjoyed reading some of your blog. It will give me something else to read while sitting in the hospital ... being so bored. Piper has finished 12 weeks of chemo, and her surgery is scheduled for Wednesday, June 8th. I look forward to reading all of Eve's story. Thanks for sharing your journey!!!<br /><br />Melissa BellMelissahttps://www.blogger.com/profile/09986719148692578738noreply@blogger.comtag:blogger.com,1999:blog-2144432922282567277.post-20480834327485255882010-07-09T11:09:50.231-04:002010-07-09T11:09:50.231-04:00Amber- I was finally able to get on it a few month...Amber- I was finally able to get on it a few months ago. Before that, the link I was using kept saying the page did not exist. It's tricky sometimes! http://listserv.acor.org/SCRIPTS/WA-ACOR.EXE?A0=WILMS-KIDSChristy Griffithhttps://www.blogger.com/profile/12475545289065722666noreply@blogger.comtag:blogger.com,1999:blog-2144432922282567277.post-33893191871344206202010-07-09T10:58:49.861-04:002010-07-09T10:58:49.861-04:00Thank you for compiling and sharing all of these!!...Thank you for compiling and sharing all of these!! Did you get connected through the ACOR site? I never was successful. We are having a lot of frustration lately with Julia's lingering side effects and doctor struggles. This would probably be my best place to get advice and support. Any guidance in where to go would be great :)Amberhttps://www.blogger.com/profile/13369258026306455670noreply@blogger.comtag:blogger.com,1999:blog-2144432922282567277.post-79981110830737994262010-07-08T13:30:00.426-04:002010-07-08T13:30:00.426-04:00Thanks Christy for doing this and acting on all ou...Thanks Christy for doing this and acting on all our behalf! "The squeaky wheel..." well, you know the rest. I pray we are so loud they have no choice but to oil our requests! :)Kerrynoreply@blogger.comtag:blogger.com,1999:blog-2144432922282567277.post-40435621547362629762010-07-07T23:45:40.241-04:002010-07-07T23:45:40.241-04:00Haha, I will change that! I didn't know if yo...Haha, I will change that! I didn't know if you wanted to keep his name private or not. So long, the Boy, welcome David.Christy Griffithhttps://www.blogger.com/profile/12475545289065722666noreply@blogger.comtag:blogger.com,1999:blog-2144432922282567277.post-87389891383257958222010-07-07T23:41:16.879-04:002010-07-07T23:41:16.879-04:00oh, he's there--as "the boy"
But y...oh, he's there--as "the boy" <br /><br />But you can call him David.Mollyhttps://www.blogger.com/profile/13774558034963099447noreply@blogger.comtag:blogger.com,1999:blog-2144432922282567277.post-17371481956930437652010-07-07T23:40:44.431-04:002010-07-07T23:40:44.431-04:00Please add David to the list--http://logicalmommy....Please add David to the list--http://logicalmommy.blogspot.comMollyhttps://www.blogger.com/profile/13774558034963099447noreply@blogger.com